Thursday, August 7, 2008

Hard Day for Irey. More Mommy Experience for Me




Irelyn finally had her appointment to check on her CCAM this past Monday. I was so nervous because they had to sedate her before her scan and it just seems like she is too little, I am the mom and i have never been sedated. They had to put a IV in her hand, this went so much smoother then the last time they tried. When she was a day old they gave her a IV before her CT scan and it took them 5 tries.














Before she went in for her scan she was sleeping peacefully but when she came out it was another story. She was having a allergic reaction to the sedation. It was making her thrash around and she kept gripping for whatever her hands could reach, she was gripping at me so frantically I came home with scratches all over my chest and arm. She couldn't cry for a few minuets and when she could it was like hearing someone howl in pain, not like a baby's cry. It was like someone was torturing my baby and there was nothing I could do to help my helpless baby, I just had to sit and wait for the medicine to wear off. I just had to hold my screaming daughter in the emergency room overflow for almost two hours waiting for her to cry herself into exhaustion. By this time is was 2:00pm and the last time she had eaten was at 7:00 am. She had no control of her little body and she was so hungry but she couldn't even suck to eat because the sedation had numbed that reflex.
Because of all her thrashing it made getting a visible scan impossible. They were telling me we would have to come back tomorrow and try the scan again. This mommy was not about to do this again. I made them try the scan one more time once she had screamed herself into oblivion.

And what do you know? It worked. The next day our pediatrician called us and informed me that her CCAM had grown and she would have to have surgery.

Can I take a mom moment here? What? MY baby, who is perfect in every physical way, has to have surgery? They had been preparing us for months for this possibility but when what is possible becomes actual it paints a whole different kind of feeling.
I spent all day yesterday just sitting around and playing with Irelyn. She rolled over for the first time, she was scooting herself across the floor with her strong little legs. She was making me laugh so hard with her sweet goofy smile. And all day i could not wrap my mind around the idea that THIS baby has ANYTHING wrong with her. I know that surgery is not the end of the world, but it feels like the end of mine.
After the being at the hospital Monday I went home and had a good cry. It was physical, emotional, and mental pain to watch her in that situation. I was fighting the urge to break down and cry with her at the hospital, but I didn't want to upset her more so I kept talking to her and kissing her. But what I wanted to do was kiss the pain away. What is it about being a mom that makes you feel so strong, like you could lift a car to save your child, and at the same time so weak when you can do nothing to help them. The moment you carry that baby they are apart of you forever. It's a bond that is as physical as it is spiritual and emotional.
I know this is not the worst thing that could happen to our family, we have been through worse. I am grateful that this is our only concern right now. That although surgery for Irey is hard to swallow, I am grateful that we have the options for surgery. I am grateful that we have Primary Children's with amazing doctors that will make Irey 100% again. I am grateful that I get to rock my baby to sleep every night and I know that she will be OK. This is just another test, another trial. But what I am mostly grateful for is that because of this amazing love I have for Irelyn I understand a little better the endless love my Heavenly Father has for me. I know that he too wants to kiss away the pain. Whenever I feel like things are really bad, I think of Jamie and the scripture she always quotes, "And this too shall pass".

20 comments:

Hightower said...

Wow Kylie! I love reading your blog when you write things like this! Very inspirational. I bet this is so hard for you! Keep being strong! Your family is beautiful!

@manda said...

Kylie! You are an amazing person. I think your entire family has such a special spirit about them. You are so strong and you are such a great mother to that little girl. I get to hear all the good stories from your Dad and your little family is so loved! Best wishes.
@manda

Paul and Rebecca Jones said...

Oh my gosh! That made me cry. I totally sympathize with the helpless mommy thing. I hate it when something is wrong with my kid. And your poor little cutie that has to have surgery. I hope everything goes well for you guys.

Anonymous said...

I know I'm only her Aunt, but that was painful for me to even have to watch her during sedation. I don't know how you did it!? But, you're a very strong woman. Hang in there. There are lots of little angels on Irey's side.

Tiff said...

Oh I am so sorry I can't believe it she is such a sweet baby I am sure everything is going to be okay but I can't imagine how worried you must be - that made me cry reading your blog that really was so sweet and it's true we have so many trials and think we aren't going to make it but we all do and it was so good for me to hear you say that and what your going through aren't kids just the best thing in the whole world!

Joshica said...

Hey Ky! I love you and your family! I love reading your blogs. They are so ispirational! I hope you know that Irey is in my prayers! I hope all goes well. PLEASE let me know if I can do anything. Give Brandon and Irey my love! -Jessie Norman

luke & sammy said...

Kylie- Bree was doing my hair yesterday and we started talking about your blog. We should be blog friends! It is fun to see pictures of Irelyn. I am so sorry she has to have surgery, what a hard thing to go through as a mom! It looks like you guys are doing great though!

luke & sammy said...

So I just noticed our blog was already on your list, good because I am adding you to mine!

Meg said...

My sweet Ky's... What is it about your families blog that makes all of us cry! Man when you were describing that I felt like I was there watching you feel so helpless.. I am SOOO sorry you had to experience that. I love you and if you need ANY help... please tell me!

Amy Jensen said...

I just love you and you always explain everything so well, especially when it comes to motherhood! That made me so sad about little Irey but I know she will be ok even though it will be a trial for a while but like you said "this to shall pass" stay positive like you always do!

gillman said...

kylie, what a hard thing for you to have to go through! i am so sorry!! sometimes its so hard to be the mom when you CANT do anything to help. i know all will go well with her! luvya!
meg

Ashli Paynter said...

I just love reading your blog. You are so amazing and are such a great mom! You make me so happy to be a mom soon! Thanks for sharing your life!

Saun and Wes said...

Oh, poor Irey! Jackson had to have surgery on his hand when he was 2 months old, and I remember going through very similar experiences that you went through. I know it's not the same, but I totally get you. Irey is beautiful, and I can't say enough how much I love her name. Also, you are a very good writer. I love reading the things you write. I think you are a wonderful mother. Irey is so lucky to have you.
-Saundra

Brooke said...
This comment has been removed by the author.
Brooke said...

Wow! Looks like you have been on an emotional roller coaster since I last talked to you! I am sorry that you have to go through this. I am sure you would take all the pain away from her if it were possible. Irey is blessed to have you as her mother. Let me know what is next for her. I want to help in any way I can. You and Irey will be in my prayers! I am sure that everything will be alright, but it still is very hard until you can get to that point! We love you guys! :)

Kruger Family Blog said...

That picture of you kissing your baby is so adorable. I just have a tear falling down my cheek right now. No but seriously... I love it.

Jamie said...

Poor little Irey! You are so strong, I'm sure you guys will be blessed for all the things you have to endure. Little Irelyn, you & Brandon are in our prayers!! Little babies shouldn't have to go through all of that!!

sHoRt BrAnDi said...

Hey Kylie! Im Brandons cousin! your blog is so cute! Irey is such an angel! I hope everything is ok! Luv u lots!

Sierra said...

I hope everything goes well. I nearly had a break down too when Maddie had her scan. I agree. They're too little for that stupid IV... It sounds like she had quite a hard time with it. So sad.

Andee said...

Your daughter is sooooo beautiful! I am glad I got to see you both at the RS retreat. It was very interesting that your testimony helped me look differently at some of the things I have been going through. You are such a great mother and your blogs are so heartfelt. Your daughter is in very good hands :)